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Continue reading →: Why Advocacy? Why Disability? Why Autism? Why Now?
I have been challenged to see the beauty, the misogony, the advancements, the racism, the caring and abelism all within the western medicine system.
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Continue reading →: Ways to Manage & Reduce Brain Fog in Chronic Fatigue Syndrome
Brain fog accommodations for ME/CFS—pacing mental work, reducing cognitive overload, and using Wonderbooks or library audiobooks to read more easily.
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Continue reading →: Finding the Right Compression Garments for POTs and Autism
Living with POTS can be challenging, particularly for individuals who are autistic. Managing symptoms often requires wearing various types of compression garments, which can exacerbate sensory sensitivities. Finding suitable fabric and levels of compression is crucial, as comfort impacts quality of life. Overall, it’s vital to prioritize mental health while…
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Continue reading →: “Sick Nurse:
A neurodivergent nurse embarks on writing a book about her experiences with Long-Covid and multiple chronic illnesses, blending memoir, poetry, and self-help elements. Designed to be disability-friendly, it will feature shorter chapters and space for reader engagement. This journey represents both a challenge and an opportunity for personal accountability.
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Continue reading →: Navigating Chronic Illness: Common Challenges and Community Support
The author shares insights on living with chronic illnesses, emphasizing shared community experiences like dismissal by medical providers, internalized ableism, and shifting priorities. They highlight the importance of recognizing these commonalities for better mutual support and stress that community is vital for coping and thriving amidst health challenges.
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Continue reading →: Accessible Disability Resources List
Hello, this list is meant to be a more accessible version of the PDF documents I have started under the resources page. This is an ongoing post, and as I have spoons, I will spend small chunks of time adding resources here. If you have one you love that isn’t…
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Continue reading →: Chronic Illness and Disabled Nursing
Ovarian Failure, failure as a woman. Menopause at the age of 29 years old. The time when I could have outworked any man. Suddenly, I was home, feeling ill and odd in my body. No yoga, no desire, just running hot and cold. Now at 38, Long-Covid and disability.…
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Continue reading →: Transforming Nursing Culture: Embracing Disability Justice
Ableism in healthcare poses significant barriers for disabled patients and nurses. It manifests in nursing practices through dismissal of invisible symptoms, skepticism towards mobility aids, and a focus on compliance over collaboration. This blog highlights the urgent need for systemic change in nursing culture to ensure inclusive, accessible, and supportive…
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Continue reading →: Understanding Tylenol and Lecovorin in Autism Research
The blog discusses the links between Autism Spectrum Disorder (ASD) and Tylenol use during pregnancy, presenting recent studies that show minimal risk increase. It critiques claims made by public figures, emphasizes the need for further research on treatments like Lecovorin, and urges a shift from deficit-based views of Autism to…
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Continue reading →: How Social Media Supports Disabled Individuals
The post emphasizes the vital role of social media and online communities for disabled individuals, offering support, validation, and information. It critiques the trivialization of self-diagnosis and advocates for better accessibility in technology. The author shares personal experiences illustrating the internet’s necessity in navigating healthcare and connecting with others who…
Hello,
I’m Casey-Lee
I have been an RN for over 14 years and have lived with chronic illness since 2019. While I have always fiercely advocated for my patients, I struggled to do the same for myself. I had to radically change how I viewed the medical system, adjust my expectations, and unlearn my tendencies toward people-pleasing.
Recognizing the challenges of self-advocacy inspired me to create this platform. The “radical” aspect is that we acknowledge the many systemic and personal factors that impact our community.
Many people experience multiple intersecting identities that create barriers to care. Such as being a person of color and disabled, a woman and disabled, or queer and disabled. Each requires unique approaches to self-advocacy.
Our resource hub will continually evolve to meet the changing needs of our community. I hope this space nourishes, empowers and provides practical tools for navigating healthcare as an advocate for yourself and others.
Let’s connect
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